Beginning to Leave the Hospital by Elizabeth Blue

(One of Elizabeth’s essays when she was almost done with her first (and we thought only) round of chemo, followed by her musings on titles and structure for the book she planned to write about this experience. God I love her mind and and am so grateful to have these writings…)

Elizabeth Blue, Elizabeth Meagher, lymphoma
Elizabeth Blue, Spring, 2012

Beginning to Leave the Hospital

March 5, 2012

I feel like I’m only now beginning to walk out of that hospital.
UMC, the day after they diagnosed me.  The day after they told me it was cancer.

I was lying in the hospital bed drugged up on morphine right after surgery (my first surgery) and my biopsy.  I looked at my mom all swollen with makeup running down my face and said to her (smiling) “If it is cancer its going to be ok.”  And she said “Yes.”  And then a few hours later they/the surgeon came to tell me it was indeed cancer.

I feel like only now, approaching treatment six, (the last one please god).  Chemo round one, round two, round three, round four and round five are done.  Whew.  I still feel like I’m in the hospital.

The shock: the utter senselessness and cruelty of being beautiful and twenty-two and having cancer is just starting to wear off and the feeling has begun.  The feeling of having had cancer.  I feel like the shock and senseless and sudden, unprovoked tragedy of it all kept me mentally in the same room it all happened in until now.  Now, six months later, my mind is beginning to catch up with the body that gathered her things from that room, left the hospital, went to school and told her family and teachers she had cancer.  And got on with it.  Took the treatment like a grinding kick in the face and a wet cold punch in the stomach, week after week and sat there quietly and didn’t say anything.  And didn’t yell at god or the world or the doctors for A: letting this shit happen and B: letting the treatment, the cure be so goddamned miserable that it destroyed her feeling and her heart and her youth and made her lose her hair and the oh dear god, fucking pic line.

They called the thing they put in me a Pick Line.  THEY CALLED IT A PICK LINE, WHAT DOES THAT MEAN TO YOU?  They put this tube into my veins and all the way down into my heart and I didn’t want it and I didn’t understand what they were going to do until they already were doing it. They exposed me to way too much radioactivity in the process and sewed it up into my skin like it was no big deal and it hurt, it fucking hurt.

Then there was this big gaping wound and a tube sewn into my body permanently and they forced a long tube into my heart and I didn’t want it and it wasn’t necessary and that was the worst rape I’ve ever experienced.  And I never cried.  I sat there and was good and quiet and cooperative because I trusted that they knew what they were doing and that they could save my life.

And they did.

But me, the real me who talks and has feelings and still can’t comprehend the fact, that cancer was inside of me, that it even could be.  The me that still can’t wrap my head around something so unfair and unpleasant could happen to the blessed child who led a charmed life.  She (that me) is still in the hospital.  Because the shock, the pure and blessed numbing shock of the news that cancer was in me froze her in time.  It froze her so the me who is numb and unfeeling and quiet and detached and removed could take over.  Take the chemo, take the treatment, take the tragedy.  And hold space for the sadness of others.  The me who I generally associate with is just beginning to de-thaw in that hospital room, shake her head and wonder how the fuck did I get here and where do I go now?  I’m hoping, I mean I think, she can come join me now.

(Musings on her future writing…)

Elizabeth Blue, Elizabeth Meagher, lymphoma
Elizabeth Blue, with Blue, Spring, 2012

The Stories We Will Tell Our Children
The journey of a 22 year old cancer survivor

Elizabeth Blue

Why this title is important:

Dr. Miller told me on our last meeting that all this would just be a story I would tell someday (an unpleasant one)
The realization that I want children came with having chemo and being told I couldn’t.
My children will exist because I had cancer not the opposite (strange)
This is my history
Buildings, ie hospitals and doctor offices are going to be the transitional and pivotal star points for this experience.  THIS IS THE STRUCTURE FOR YOUR STORY ELIZABETH.  IT HAS ALREADY BEEN GIVEN.  THIS IS LUCKY.  BUILD THE STRUCTURE/SECTIONS/CHAPTERS OF THE BOOK AROUND CHEMO ROUNDS AND HOSPITAL VISIT AND DR. VISITS.
Interview Mom, perhaps others as an example of how narratives vary
talk about trauma theory and troubles with perception
there is a lot here.
Now, should it be a biography or just this story?

Other ideas include:

“High Tales and Desert Winds”
“For My Mother”
“Coming Home”
Mama: How having cancer brought me back to my mother  (The journey of a twenty two year old cancer survivor.)

©Elizabeth Blue, 2012

Lucia Maya

I live and write in Makawao, on Maui, Hawaii. I write on my blog about my experience with my daughter Elizabeth Blue, during the last year of her life living with cancer and dying in a state of grace. I follow my passion in my work, doing Energy Healing (Reiki, Karuna Reiki and Craniosacral work) and spiritual counseling, in person and at a distance, teaching Reiki and facilitating spiritual workshops. I have a blog on my site as well!

18 thoughts on “Beginning to Leave the Hospital by Elizabeth Blue

  1. I loved reading about Elizabeth’s beautiful life. Thanks for sharing so eloquently. I am so sorry for your loss.


  2. Hello Lucia
    I came across your wonderful blog about your daughter Elizabeth through seeing a post on FB about funerals at home. For some reason (and I have no idea why) it intrigued me and then I started reading this blog. It s so beautiful from start to, well I can’t say finish as I don’t believe for one moment that physical death is the end. I just want to say thank you for pouring out your feelings, thoughts and love for your daughter and her journey. Perfection XX


    1. Dear Claire, thank you so much for taking the time to read about Elizabeth, and our journey. I agree (obviously) that death is not the end, and it’s always nice to connect with someone who feels that as well! Thank you for writing. love, Lucia


  3. I have so much in common with Elizabeth, I feel like we were living similar paths parallel, distanced enough to avoid eye contact, like the part in the movie where the people looking for each other walk right past each other without seeing each other. I started reading this blog to apply for the scholarship, but it seems it’s become much more, a contemplation of the transition stages, learning what is most important, opening to the vulnerability the depth of these emotions opens us up to. Each day I dive further into this process, I feel more expansive. Thank you for being so honest and open.


    1. Thank you for writing, it is so good to hear that our stories have touched you and helped you feel more expansive! It is certainly a reminder of letting go of anything that’s not truly important, and appreciating each day and all we have… blessings, Lucia


  4. What an amazing person Elizabeth was. You are so strong. I always think I am slipping deeper and deeper into my grief and the despair of coming to terms with the fact that I have to live without my child. You are so strong! I admire you.


    1. Dear Tersia, Elizabeth was quite amazing, and I am strong, and grateful that it is both in my DNA, as well as a choice I can make most days. I also have days of deep grief and that can be part of being strong as well. I try not to judge myself, and know that all the emotions are part of the healing process, and that as long as I allow them to move through without judgement, the easier it is. I send you love and blessings, Lucia


  5. Oh, boy. Should I say, “I identify?” The shock freezing you in time, the split of being the person then, and the one you seem to be now. And what a lovely line: “And hold space for the sadness of others.” These pieces are not only of her mind, but of her spirit, which goes on and on and touches all of us. I have to laugh when people want “proof” of what they can’t see. What better proof of soul than of the profound way Elizabeth moves even those of us who haven’t met her?


    1. Yes! She continues to amaze and inspire me, and I love knowing that she’s touching others too. She is happy, I can feel it – I do think she and Philip hang out together and helped to connect us. I feel Elizabeth has brought some amazing new friends into my life, and I count you as one of them. Thank you.


  6. Oh, this is so powerful. So honest. So vivid. Her life, short as it was, is so full of meaning. What a purpose she was given.


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