Praying ~ Mary Oliver

elizabeth blue, bird tattoo,PRAYING

It doesn’t have to be

the blue iris, it could be

weeds in a vacant lot, or a few

small stones; just

pay attention, then patch

a few words together and don’t try

to make them elaborate, this isn’t

a contest but the doorway

into thanks, and a silence in which

another voice may speak.

~from Mary Oliver’s collection of poetry, “Thirst” (Beacon Press, 2006).

Thank you to my wonderful mother for sending this at the perfect time. I’m mostly without words these days, while I’m resting and recuperating from my move and all that was involved. I expect they’ll be back soon, and Elizabeth will have more to say too…

Ghost Cats

I’m in the process of moving to Maui at the end of this month, and I’m selling my home and many of my belongings.  It’s been keeping me busy and full of a mix of emotions.  Yes, of course I’m happy and excited to be moving to Maui – paradise as everyone calls it…Now don’t get me wrong, I am beyond grateful, and know that I am truly blessed. I feel grateful for my nearly 9 years in Tucson, and the many gifts I’ve received, the opportunities, the community, friends, and how my work has blossomed and grown. I know it’s time to leave, and am grateful that my time here is complete, and the universe has “assigned” me to such a beautiful new home, one I’ve been waiting for for many years. It is time.

And, it’s hard, this leaving. Part of the process of clearing out means I’ve been going through all the rest of Elizabeth’s things and and giving away much of them: clothes (she had a LOT of them, as anyone who knew her is aware!), jewelry (also a great deal of jewelry she’d bought, been gifted, and made herself), personal belongings, art, and writing, as she was always a journal keeper and saved all her writing, which I’m so grateful for, and ALL of which I keep!

Going through her clothes has been the hardest, as they are possibly more intimate aspects of her even than her writing. Elizabeth had expressed herself through clothing since she could first crawl to the shelves and pick out her outfits! Her many personalities were expressed, and she still had her shredded pink Converse high tops from her punk days, her many pairs of high heels, and then clothes. Clothes to dress her school self, out dancing with friends self, going on a date self, getting chemo self which she also wrote about here…As I was despairing about how to find a home for all her clothes (that didn’t fit either me or her sister), I got an email from Felice, a friend and teacher of Elizabeth’s, who is about the same size, and whom Elizabeth adored.  I asked if she’d be willing to take them, and she said she’d be honored, and would also distribute them to friends who might like some! I felt Elizabeth at work behind the scenes helping me…

Everywhere I go in Tucson I am reminded of time spent with Elizabeth, from the cafes where we often met for coffee and conversation, to the hospital, cancer center, naturopath’s office where she received treatments…it is bittersweet, these memories and this leaving. As I leave behind the places with sad memories, I also leave behind reminders of our time as a family, of our closeness, of her homes, her friends, her jobs.  I know the memories are with me, and Elizabeth is alive in my heart wherever I am, but those tangible reminders will not be part of my daily life – a relief and a loss, at the same time.

So today, while my house was being held open, I went to a movie, a chance to rest that was much needed. The only one playing that appealed was “The Secret Life of Walter Mitty”, which I’d heard nothing about. I believe Elizabeth was guiding me to see it, and I’ll tell you why.  First, it was wonderful – funny and moving, a movie about transformation and Life, just what I needed. I really felt her presence, and started to cry during a scene towards the end.  An amazing photographer has climbed high in the Himalayas, waiting patiently for an elusive Snow Leopard to appear so he can photograph it. He speaks of how hard they are to see, and that they are called “ghost cats” because of this. I was immediately brought to Elizabeth’s fascination with and love of snow leopards, (all cats, but especially them), and a video that she had had shared with me, that we’d watched together over and over, delighting in the play of snow leopard kittens in a zoo. In an amazing reading someone had done from Elizabeth’s photo, the woman had said that she is “still drinking mint juleps (a line from one of her poems) out of silver goblets and is finally with her snow kitten”.  In the film, the photographer chooses not to capture the moment on film after all that, saying that sometimes he prefers to just take in the moment…beautiful!

I felt that Elizabeth had guided me to this film, as a way of connecting with me. I’d been feeling like she’s been far away, but also feeling like I’ve been SO busy that I haven’t had time to be quiet and notice her.  This was the first time in a while that I was not engaged with others, and she showed up.  Thank you Elizabeth, my ghost cat – here’s the video for you, though I imagine you can now enjoy snow leopards anytime you like!

Gratitude and Clearing Out

I had a wonderful end of 2013, with my 50th birthday spent with my closest family and a good friend, with delicious food,  the people I love the most (most of them anyway), and even time on the beach in California!  It was a perfect day.  Except, of course, that Elizabeth wasn’t there, though I certainly felt her presence.

For months I’d been wondering how I could gather my family and friends to celebrate my 50th birthday, which is on Christmas eve, but it felt too overwhelming and stressful to orchestrate.  Somehow, (and I believe Elizabeth helped out here), the only time we could all meet up for our annual family vacation was my birthday week!  We’ve never done our trip Christmas week, but it worked perfectly, and I didn’t need to do anything other than say yes and show up.  Family flew in from Hawaii, the East Coast, and drove from Tucson and northern California, and we had a beautiful week together in Santa Barbara…

Lucia Maya, birthday dinner

Lucia’s 50th birthday dinner, with roses from Elizabeth

When we arrived at the restaurant for my birthday dinner, the hostess showed us to our table, strewn with rose petals, and said, “Someone named Elizabeth was here earlier and left the roses for you.”  We all stared at her, asking her to repeat herself, until we realized it must have been my friend Victoria, who was staying nearby.  She had brought the roses and said to tell us they were a gift from Elizabeth, but the way that was communicated was a bit startling to us all!

My year has started off wonderfully too. Since coming home, I’ve had the pleasure of my partner Zelie being home for a few days, and now my daughter Julianna being here with me for her winter break, likely our last time together in Tucson.  I have put my house for sale and am preparing for my move to Hawaii, where I’ll be based on Maui and continue to spend part of my time on Molokai, offering retreats with my partner.  I move at the end of February, and it’s been a very busy few months of clearing, packing, and organizing!

Julianna has been amazing, helping me with not only the practical aspects of preparing for a huge yard sale (I’m not taking much with me to Maui), but also the more emotionally charged ones of going through Elizabeth’s boxes of belongings.  Yesterday we sorted through 3 boxes of her journals, jewelry, photographs and clothing, and it somehow felt relatively easy, making decisions about what to save (journals, of course) and what to let go of.  It was wonderful to have Julianna with me while I made decisions, taking what she wants to have, knowing that we are both clear on what feels right to save, and what to let go.

Elizabeth Blue, Elizabeth Meagher, Sedona,

Self Portrait by Elizabeth – Blue Boots at Sedona Creek

Today I still needed to get through Elizabeth’s file folders, and that was unexpectedly much harder. Perhaps it was reading many of her papers from high school, or seeing her handwritten notes and to-do lists. Perhaps it was tossing piles of teacher’s evaluations of her, and feeling like none of that mattered, as she’s not here anymore. What difference does it make what her 9th grade English teacher thought of her work?  Perhaps it was seeing again her funny labels on her folders that I threw away, but couldn’t help photographing first, as they are so endearing:

Image

It feels good to be letting go of so many things, feeling like the things are not very important anymore, and traveling lighter feels right.  The move to Hawaii also feels very right, after years of feeling it coming, knowing it is now time, and that moving away from this home and this town where Elizabeth was last, mostly feels healing.  It feels expansive and like my work and my life can open in new ways, hopefully to be in service in larger ways, and in a place that will be healing for me as well.

And so I will continue to write, write; talk, talk. Edit away.  And pack, and store, and recycle, and sell, and cry, and laugh, and love.

Last, I want to express so much gratitude to all of you who’ve found this blog and surrounded me with so much support, friendship, and love.  55,000 of you visited last year, from 136 countries! That may be small in the blogging world, but it’s huge to me, and I can’t say how much I value each of you who read this blog, and who share yourselves with me.

Coming Home to Die

I heard an excellent story on NPR the other day, about How Doctors Die, and how even though the majority of people in the U.S. say they want to die at home, surrounded by loved ones, less than half do and most die in the Intensive Care Unit (ICU). In Tucson, where I’ve lived the past 8 years, only 10% die at home.  This is partly because when we are very sick, doctors are not likely to tell us the whole story, and we are not willing to ask the important questions – what are the implications of this treatment, what will be the quality of my life, how much time might this treatment add to my life, what are the risks and benefits…?

it reminded me of how difficult it was for the doctors to tell us what was really happening when Elizabeth was in the ICU.  She’d had 2 chemo treatments when the lymphoma had spread to her brain, that had not shrunk the tumor.  She’d had brain surgery to “debulk” the tumor, which had reduced the size of one tumor, though now we learned there were two in her brain, and probably more in her spine.  The surgery had increased the swelling in her brain, necessitating a 2nd surgery to remove part of her skull, and then a stroke left her paralyzed except for her right arm and head.  She was intubated, meaning she couldn’t speak, and it was so painful that she tried to pull the breathing tube out if her hands were free.

Elizabeth had told me clearly when going through her first chemo treatments: “Mom, I don’t want to go through years of treatment for cancer only to die of it. I don’t want to live like that.”  I looked at her and I said “you won’t”, knowing somehow, that it was true, she would not.

But the doctors were still coming to the ICU each day and telling us she could go to rehab, learn to walk again, she’d need radiation to her brain, a different chemo drug…and I was a believer still, not yet seeing what was in front of me. Powerless, and still hopeful. Around the 6th night she was in the ICU, in the hallway, our favorite nurse said to me “I heard from your friend that you’re starting to talk about hospice.” I was shocked.  That was the first time I’d heard the word used in relation to Elizabeth, and we had NOT started to talk about hospice! I was angry at her, felt violated and that she’d crossed some line.  Only later was I incredibly grateful for the one brave woman who would dare speak the truth.

The next morning, after some time had allowed this idea to sink in, I asked the oncology team to tell us what was realistic. Did hospice make more sense than planning to continue treatment? Only then, when confronted, did they say yes, hospice was probably the way to go, that the treatments being discussed weren’t likely to be successful. They also passed it off to Elizabeth’s specialist, who had never come to the hospital, saying he’d have to talk to us for the final word. He came that day I think, and sat with me and Greg, and told us that she could try more chemo, or radiation, but it would likely only add days or weeks to her life and he didn’t recommend further treatment.  There was no question in my mind that Elizabeth wouldn’t want that, and I didn’t want that for her either.  All I wanted then was for her to come home, be out of the ICU, in a beautiful, peaceful place where we could care for her ourselves.  Dr Miller also told us that if he let himself, he’d be sobbing along with us, but he couldn’t.  That he wanted to be the hero who saved her, and he hated that this wasn’t the way the story was going to end. I know he didn’t want to be there either, having this conversation. No one wants to be the one to tell the parents of a 22 year old young woman that she will die soon.

We still had to fight hard to get her breathing tube removed, as she had a hard time passing their breathing test, though she was breathing on her own. The ICU doctor was afraid they’d have to intubate her again, if she didn’t have the strength to continue on her own.  I knew she’d be fine, that she needed to get the breathing tube out, so we could take her home.

Elizabeth Blue, ICU,

Elizabeth in the ICU

Finally, after days of promises and disappointments, they removed the tubes (partially because her dad had a rare, but necessary, blowup at the ICU doctor). She breathed fine, and she could speak again! I then told Elizabeth what Dr Miller had said, that there were no more treatments to try and she could come home.  She looked at me and said, “I’m relieved.” I looked in her eyes and said, “I understand.”  Elizabeth said, “I’m so glad you understand! I was afraid you wouldn’t.” I told her of course I understood, that she had done everything she could possibly do, and I just wanted her to come home where I could take care of her, and she wanted that too.

She’d had a feeding tube in, and as soon as her hands were free, she tried to pull it out. I explained that she might not be able to eat, as we didn’t know if she could swallow still, and asked if she understood what that meant. The doctors advised against it. She said yes, she wanted it out, and got it most of the way before a nurse could help her. Once that was done, and she wasn’t attached to the machines, we arranged quickly with hospice for a bed to be delivered to our home, and she came home the next day, after 10 days in the ICU.

Elizabeth Blue, Lucia Maya, hospice,

Elizabeth at home in hospice

If that nurse hadn’t spoken up, if we had been compliant and unquestioning, if we didn’t have great family support, a friend who is a doctor…Elizabeth might well have lived her last weeks in the ICU, hooked up to LOUD, painful, machines, with ICU psychosis (an actual condition they acknowledge there) from bright lights 24 hours a day, nurses waking her up every few hours, not able to speak, eat, laugh or just be.

roses, altar, Elizabeth Blue,

roses on the altar

As it happened, she came home and lived two more extraordinary months. The most beautiful, grace-full, love-filled times I’ve known.  There was healing and completion in many relationships. Time with her sister. Visits and laughter with family and friends. Singing bowls played. Silence. Books read. Poetry listened to. Soft sheets. Daily massage. Cuddling. Favorite foods. Music of all sorts – from Graceful Passages, Beyonce, Ashanna and Wu-Tang Clan. Fresh roses and altars with sacred objects. Soft light, birds, flowering plants and trees outside the windows.  We had time to talk of fear, of death, of love, of acceptance, of regret and loss, and joy and peace…It was so beautiful. And I am so blessed to have shared that time with her, and so immensely grateful it happened the way it did.

If I’m very lucky, I will die as she did (except for the Wu-Tang Clan), surrounded by love, being loved, and being Love.

Elizabeth Blue, hospice,

Elizabeth and Lucia’s hands

Elizabeth Blue, hospice,

Elizabeth with her Grandma, at home

I recommend filling out 5 Wishes, a living will written in plain language, that gives great options for how you might want to be treated if you can’t speak for yourself. Take some time to think about how you want to live and how you want to die…

Elizabeth’s Gifts

Elizabeth loved clothes. From before she could speak (which was early!), she was in charge of what she wore, and as soon as she could dress herself, she did, always with several changes of outfits, sometimes before we even left the house in the morning. This theme carried throughout her life, with her love of spending hours in thrift shops and used clothing stores, searching out the perfect pieces, always combining them in ways unique to her.  She would often select items that seemed way out of style, or really unattractive (to my eye), but then she’d put an outfit together that was truly a beautiful form of art.

Elizabeth Blue, style, Elizabeth Meagher,

Elizabeth Blue in a favorite outfit, self-portrait.

 

 

 

 

 

 

 

 

 

 

 

 

 

It was one of her greatest artistic expressions, and one she had innately, but was also enhanced by her adoration of her godmother Victoria, who has a similar gift.  I think Elizabeth’s also came through her genes, but skipped a generation or two, as I have never cared about clothes in this way, though my grandmothers did, and Julianna, my younger daughter, has an equally unique and artistic style, though quite different from Elizabeth’s (she used to dress in British school boys’ uniforms in public middle school in California…but that’s another story!)

Last night I took a bath, and searched my closet for a bathrobe to put on after.  I found this white, silk, kimono-style robe that was Elizabeth’s.  I put it on and realized that it fits perfectly, is incredibly comfortable, flattering, and the robe I’ve always wanted…and I remember well the day she bought it.

In June of 2012, Elizabeth’s cancer had recurred, in her brain, and she was receiving high doses of chemo in the attempt to cross the blood/brain barrier, that is there to protect our brain from toxins that can harm it.  She was on several medications to prevent seizure and reduce swelling in her brain, and we had some idea of how serious this all was.  I can see now, in hindsight, that she understood, or knew, that she was most likely going to die.  I did not. I was steadfast in my optimism, only allowing in what I needed to get her the best possible care she could have. With the recurrence and spread of cancer, in addition to the allopathic treatment, Elizabeth was open to adding all complementary methods as well.  She was seeing an oncology naturopath, who prescribed many supplements to be taken throughout the day, on a strict schedule, to enhance the chemo regimen. She was scheduled to do a hypnotherapy session, and had started physical therapy to maintain strength, as she couldn’t do much yoga, being weak and dizzy. As it turned out, the cancer was growing too quickly, and nothing could change what was her ultimate path.

Elizabeth Blue, raw food, Kathleen Bowman,

Elizabeth and Kathleen sharing some delicious raw food, with that bag full of supplements to  enhance the chemo regimen. June, 2012

So our dear friend Kathleen, who is an amazing healer and has an advanced understanding of the healing power of raw food, drove from Colorado to visit us for a couple days, and share some of her knowledge with us.   Elizabeth adores Kathleen, was thrilled that she’d come out to help, and was aware what a loving and generous gift it was for Kathleen to drive 2 days each way to visit! The first day she was here, we made a big list of food we needed, and headed over to the food coop to shop.

Across the street from the coop is one of Elizabeth’s favorite vintage clothing shops.  Well, there was something she HAD to look for that day.  Kathleen and I were at first agreeable, and wandered around the store for a bit, but didn’t see anything we needed, though I think we played with hats for a while…After half an hour or so, we told Elizabeth we’d go to the cafe next door and get some iced coffee, but she needed to finish up.  It was over 100 degrees that day, and we were tired. After a while, I went back to check. She was still trying clothes on, and I was really annoyed. I felt she wasn’t being respectful of Kathleen’s time, that we only had a couple of days to learn as much as we could, and she was “wasting time” by spending so much of our afternoon trying on clothes…This was always a favorite activity of hers, and I didn’t have much patience for it, though I now wish that I could have found a way to spend more time with her doing the things she loved.

Finally, she made her purchase  – a white, silk robe, that she felt she really needed.  We went across the street, did our food shopping, and went home, all three of us tired from the heat and the outing. Kathleen continued to teach us and share her wisdom, and it was an amazing few days we spent together.  Elizabeth diligently ate raw foods even while in the hospital, up to the time she came home to hospice care, when she went back to eating cooked foods, all her favorites…

She only wore the white robe a few times. When I put it on last night, I felt her presence, and felt that she’d perhaps picked it out for me, as well as herself.  I’d almost given it away, but something had said to keep it, even though I thought it wasn’t my style or size, and I remembered so clearly the day she bought it. As I was wearing it last night, it felt like it was custom made for me, the size, shape, texture, color…I love it.  I just heard “it’s an early birthday present” – my 50th birthday is in a month, and Elizabeth always bought or made me very thoughtful presents, and wrote me beautiful cards.  I will miss her especially on my birthday.

When I hung the robe up this morning, and was thinking that perhaps she’d had me somewhere in her mind when she chose it (selfishly, I know), the tag caught my eye. “Esme” is the name, and I caught my breath – that is a name Elizabeth considered for herself for years, and used for her email address, though she spelled it Ezme, with wonderful layered meanings. It felt like another sign from her, and it’s lovely to feel her close as I wear this robe, for many years to come. Thank you Elizabeth, for this gift.

Leaving Her Body…

Elizabeth Blue, Jade Beall, Elizabeth Meagher

Elizabeth Blue ~ April, 2012 by Jade Beall

 

 

 

 

 

 

 

 

 

 

 

 

One year ago today, the email below I sent to our close friends and family. Now I share it here, with those of you who have joined me on this transformative, healing journey.

As I prepared for this first anniversary of my daughter Elizabeth’s death, I anticipated it would be challenging. I’ve been learning how to care for myself, my needs, better and better throughout this time, so I asked close family and friends to gather, a very small group who knew and love Elizabeth (and me!) dearly, to come and spend time together.  We’ve spent the last couple of days telling stories, looking at photos, doing art projects with Elizabeth’s image, eating, laughing, resting, loving Elizabeth and each other…

We plan to begin the process of releasing her ashes today, spreading some in one of her favorite places in Tucson, with plans to spread more in Berkeley and Hawaii later, two of her other favorite places. I honor her and remember her every day, and oddly, today doesn’t feel as momentous or intense as I expected – I’m wondering now if the emotion will come when everyone leaves and I’m alone again…in this first year, even the hardest days have been fine, as I’ve watched myself experiencing emotion like never before, and always able to be aware that it will pass, that all I need to do is be present and keep trusting my heart. Thank you all for being here with me in this first year. Your presence from near and far, old friends and new, strangers and family, has meant so much. I am so grateful for each of you. Thank you.

Leaving Her Body

September 23, 2012

Dear Ones,

Elizabeth left her body this morning around 4:30 am.  She was peaceful, she knew I was right with her, holding her hand, talking to her and loving her. Something woke me at 4am, and I went to check on her. As I heard her breathing, I knew she was very close, and sat down to be with her.  I was thinking it could be a few hours still, so was about to lay down on the couch, when I heard her take one breath, and then realized it was her last one.  Her heart continued for a while…

Since yesterday morning her breathing had changed, and Greg (her dad) and I had spent the whole day sitting close, talking to her, telling her how much we love her, and how many people love her and have been affected by her.  She was mostly in another world, but every few hours would open her eyes, and was still so clear, with the same love and grace in her gaze.

I am so grateful for the gentle waves of these passages, that each new wave has washed over, giving me time to adjust, to accept, to move into the next stage gracefully, diving in deep and emerging with an ever more cracked open heart, and knowing there’s still more and still more….

As usual, we are doing something a bit unusual – we are keeping Elizabeth’s body at home for a few days, having cleaned, anointed and prepared her body ourselves.  We will have a visiting time here, for anyone who is in Tucson, if you want to say goodbye to her body, and connect with me and family.  She will be cremated in a couple of days.

We are also planning a large, public memorial service in 2-3 weeks.  We will honor and celebrate her life, with music, stories, photos and her poetry.  Do not feel you need to come and see her body,  it is simply a possibility if you want to say goodbye in this way.

More to come…

love and blessings,
Lucia

This photo is of her last night, still beautiful and at peace.

Elizabeth Blue, Elizabeth Meagher, hospice

Elizabeth Blue her last night, 9/22/12

Elizabeth Blue,  Jade Beall, Elizabeth Meagher

Elizabeth Blue, April, 2012 by Jade Beall

Slowing Down – emails from the depths, September, 2012

Slowing Way Down

Some of the last emails I sent, about my older daughter Elizabeth Blue’s journey towards the ultimate release, from the two weeks before her transition last year. 

September 14, 2012

Dear Ones,
things here are slowing waaay down.  No words now, sometimes nodding or shaking her head in response to a question, sometimes that seems too much effort.

Elizabeth still has no pain, is comfortable and has no fear that I feel…there are lots of folks assisting her, both here and in the other realms too.  She’s not eating still, and only taking small sips of water.  The hospice nurse and our doctor/friend Ann Marie assure us that all is progressing as expected and in the best possible way as far as being peaceful and comfortable.  Even throughout the day there are changes, as tonight she had a hard time taking one of the medicines through a straw, so we skipped that one…it’s probably only days left now, but it’s still hard to say.  She’s breathing fine, a bit different now, and very inward, very much connected with the other worlds now.

Today 10 of Elizabeth’s friends came to say goodbye, led by Samantha, her closest friend, and it was so beautiful.  Full of tears, laughter, stories, reminiscences – they each took a turn holding her hand, kneeling by her bedside and talking to her, kissing her, loving her and telling her goodbye. It was exquisite.  They were all so loving, so respectful and sweet with us.  Amazing.

Feeling how precious we each are, remembering to tell those you love how you feel, letting the small things go, knowing that each day is precious, each smile, each kiss… for us all, not just Elizabeth.

sending love to you all ~ if you’re receiving this email know that I love you.
love,
Lucia

Samantha Salazar, Elizabeth Blue, Elizabeth Meagher, hospice

Elizabeth’s best friend Samantha and their circle of friends came to say goodbye, 9/14/2012

Lucia Maya, Elizabeth Blue, Elizabeth Meagher, hospice

Lucia and Elizabeth snuggle, 9/12/12

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

September 15, 2012

…a rare and REALLY hard day, watching Elizabeth visibly recede, and I was compelled, like I was a zombie, to watch some of E’s video diaries, of her when she was healthy, and then right when she was finishing chemo, and so hopeful and herself… it was beyond heartbreaking, and I’ve been avoiding going back and revisiting other times, but today i got pulled in.  The rest of the day I can barely be present with her. Can’t sit still, am angry, rageful, so sad…

September 19, 2012

Dear Ones,
Elizabeth hasn’t been eating for 2 weeks now, except for these few times: it was lovely that she ate what seemed to be her last meal from Zelie, some fruit and toast for breakfast.  Then 4 days later when Greg arrived, with her favorite dessert, carrot cake, she ate a few bites, and then our dear friend Tita brought by some food, and Greg prepared and fed Elizabeth a whole meal of beans, rice, avocado, quesadilla – all her favorite foods, and it was so beautiful, her being able to receive that from her dad, who has such a deep connection to food and sharing his love for people through food…Then I was writing to him about how lovely that was, and realizing that I couldn’t remember the last food I’d fed her, and felt really sad.  A few hours later I offered her food again, (now days since she’d said yes to eating) and she said yes, as though she knew what I’d been thinking.  I fed her a perfect peach, and she gave me the gift of being able to feed her one more time…

She’s had almost no water for that long too (just enough to take pills and a few more sips), though the last few days it’s been hard for her to swallow, so she gets no pills, only 2 medications to give now, both liquid.  She has occasional ice chips, but often says no to that too.

She started having some pain a couple of days ago, so has had liquid morphine 3 times, but no pain yesterday or today.  She still has tremors/shakiness so gets liquid lorazepam a couple of times a day for that.  She’s sleeping much of each day, partly from the medication, and partly from having so little energy. She’s wanting to be alone more, doesn’t want any visitors and some days doesn’t want me around, which is different.  So it really feels like she’s disconnecting from this world…

Given all this, it’s quite remarkable that when there are no medications in her, she’s still quite clear, with a small smile to greet me in the morning, and this morning gave a thumbs up to my questions of how she slept and how she was feeling…She still rubs her lips together when i put lip balm on, like she always has, just very slowly now.  And she doesn’t want me to massage or put lotion on her now – it seems like too much stimulation, and bringing her back into the awareness of the body.

She’s not been talking for quite a while, but can still sometimes nod or shake her head, though even that takes effort now, using a lot of energy.   She is still comfortable and seems very peaceful.

So there’s no way to say how much longer she might be here, though without any water it seems it can’t be much more.  She is amazingly strong, and so courageous and loving.  She did say yes a few days ago when I asked if she feels ready to leave, and if she feels that she’s completed everything she came here to do.  That hadn’t been true a few weeks ago, so I was grateful to hear that.

Sending much love to all of you, and connecting at the heart…
love,
Lucia

Elizabeth Blue, Elizabeth Meagher, hospice

Elizabeth today (9/19/12), with her newest blue bracelet and a silky blanket under her head, both from Aunt Tashe, with her bunny by her side. She’s wearing a favorite ring from my Aunt Amy. Surrounded and enveloped in so much love…